Scientific Papers

Comparisons of EQ-5D-Y and PedsQL in pediatric patients with mild-to-moderate chronic kidney disease in longitudinal analyses | Health and Quality of Life Outcomes


  • Becherucci F, Roperto RM, Materassi M, Romagnani P. Chronic kidney disease in children. Clin Kidney J. 2016;9:583–91.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Kang NR, Ahn YH, Park E, Choi HJ, Kim SH, Cho H, Cho MH, Shin JI, Lee JH, Park YS. Mental health and psychosocial adjustment in pediatric chronic kidney disease derived from the KNOW-Ped CKD study. Pediatr Nephrol. 2019;34:1753–64.

    Article 
    PubMed 

    Google Scholar
     

  • Hsu C-N, Lu P-C, Lo M-H, Lin I, Tain Y-L. The association between nitric oxide pathway, blood pressure abnormalities, and cardiovascular risk profile in pediatric chronic kidney disease. Int J Mol Sci. 2019;20:5301.

    Article 
    CAS 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Wong G, Medway M, Didsbury M, Tong A, Turner R, Mackie F, McTaggart S, Walker A, White S, Howard K, et al. Health and wealth in children and adolescents with chronic kidney disease (K-CAD study). BMC Public Health. 2014;14:307.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • de Ferris MED-G, Pierce CB, Gipson DS, Furth SL, Warady BA, Hooper SR. Health-related quality of life in children with chronic kidney disease is affected by the number of medications. Pediatr Nephrol. 2021;36:1307–10.


    Google Scholar
     

  • Grootenhuis MA, Stam H, Last BF, Groothoff JW. The impact of delayed development on the quality of life of adults with end-stage renal disease since childhood. Pediatr Nephrol. 2006;21:538–44.

    Article 
    PubMed 

    Google Scholar
     

  • Gerson AC, Wentz A, Abraham AG, Mendley SR, Hooper SR, Butler RW, Gipson DS, Lande MB, Shinnar S, Moxey-Mims MM. Health-related quality of life of children with mild to moderate chronic kidney disease. Pediatrics. 2010;125:e349–57.

    Article 
    PubMed 

    Google Scholar
     

  • Al-Uzri A, Matheson M, Gipson DS, Mendley SR, Hooper SR, Yadin O, Rozansky DJ, Moxey-Mims M, Furth SL, Warady BA. The impact of short stature on health-related quality of life in children with chronic kidney disease. J Pediatr. 2013;163(736–741): e731.


    Google Scholar
     

  • Kiliś-Pstrusińska K, Medyńska A, Chmielewska IB, Grenda R, Kluska-Jóźwiak A, Leszczyńska B, Niedomagała J, Olszak-Szot I, Miklaszewska M, Szczepańska M. Perception of health-related quality of life in children with chronic kidney disease by the patients and their caregivers: multicentre national study results. Qual Life Res. 2013;22:2889–97.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Hsu C-N, Lin H-W, Pickard AS, Tain Y-L. EQ-5D-Y for the assessment of health-related quality of life among Taiwanese youth with mild-to-moderate chronic kidney disease. Int J Qual Health Care. 2018;30:298–305.

    Article 
    PubMed 

    Google Scholar
     

  • Dotis J, Pavlaki A, Printza N, Stabouli S, Antoniou S, Gkogka C, Kontodimopoulos N, Papachristou F. Quality of life in children with chronic kidney disease. Pediatr Nephrol. 2016;31:2309–16.

    Article 
    PubMed 

    Google Scholar
     

  • DeWalt DA, Gross HE, Gipson DS, Selewski DT, DeWitt EM, Dampier CD, Hinds PS, Huang I-C, Thissen D, Varni JW. PROMIS® pediatric self-report scales distinguish subgroups of children within and across six common pediatric chronic health conditions. Qual Life Res. 2015;24:2195–208.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Selewski DT, Massengill SF, Troost JP, Wickman L, Messer KL, Herreshoff E, Bowers C, Ferris ME, Mahan JD, Greenbaum LA. Gaining the patient reported outcomes measurement information system (PROMIS) perspective in chronic kidney disease: a Midwest pediatric nephrology consortium study. Pediatr Nephrol. 2014;29:2347–56.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Francis A, Didsbury MS, van Zwieten A, Chen K, James LJ, Kim S, Howard K, Williams G, Treidel OB, McTaggart S. Quality of life of children and adolescents with chronic kidney disease: a cross-sectional study. Arch Dis Child. 2019;104:134–40.

    Article 
    PubMed 

    Google Scholar
     

  • Tjaden LA, Grootenhuis MA, Noordzij M, Groothoff JW. Health-related quality of life in patients with pediatric onset of end-stage renal disease: state of the art and recommendations for clinical practice. Pediatr Nephrol. 2016;31:1579–91.

    Article 
    PubMed 

    Google Scholar
     

  • Carlson J, Gerson AC, Matheson MB, Manne S, Warady BA, Hooper SR, Lande M, Harshman LA, Johnson RJ, Shinnar S. A longitudinal analysis of the effect of anemia on health-related quality of life in children with mild-to-moderate chronic kidney disease. Pediatr Nephrol. 2020;35:1659–67.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Ruidiaz-Gómez KS, Higuita-Gutiérrez LF. Impact of chronic kidney disease on health-related quality of life in the pediatric population: meta-analysis. J Pediatr (Rio J). 2021; 97(5):478–89. https://doi.org/10.1016/j.jped.2020.10.013.

  • Tain Y-L, Lu P-C, Kuo H-C, Hsu C-N. Differences in health-related quality of life in children with chronic kidney disease as reported by children and parent proxies. Pediatr Nephrol. 2023;38(2):519–28.

  • Petersson C, Simeonsson RJ, Enskar K, Huus K. Comparing children’s self-report instruments for health-related quality of life using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY). Health Qual Life Outcomes. 2013;11:75.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Tain Y-L, Lu P-C, Kuo H-C, Hsu C-N. Differences in health-related quality of life in children with chronic kidney disease as reported by children and parent proxies. Pediatr Nephrol. 2023;38:519–28.

    Article 
    PubMed 

    Google Scholar
     

  • Lee C-T, Lin C-Y, Strong C, Lin Y-F, Chou Y-Y, Tsai M-C. Metabolic correlates of health-related quality of life among overweight and obese adolescents. BMC Pediatr. 2018;18:1–8.

    Article 
    CAS 

    Google Scholar
     

  • Hsu C-N, Lu P-C, Hou C-Y, Tain Y-L. Blood pressure abnormalities associated with gut microbiota-derived short chain fatty acids in children with congenital anomalies of the kidney and urinary tract. J Clin Med. 2019;8:1090.

    Article 
    CAS 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Hsu C-N, Lu P-C, Lo M-H, Lin I, Chang-Chien G-P, Lin S, Tain Y-L. Gut microbiota-dependent trimethylamine N-oxide pathway associated with cardiovascular risk in children with early-stage chronic kidney disease. Int J Mol Sci. 2018;19:3699.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Devlin N, Parkin D, Janssen B. Methods for analysing and reporting EQ-5D data. Springer Nature. 2020. https://doi.org/10.1007/978-3-030-47622-9.

  • Wille N, Badia X, Bonsel G, Burström K, Cavrini G, Devlin N, Egmar A-C, Greiner W, Gusi N, Herdman M. Development of the EQ-5D-Y: a child-friendly version of the EQ-5D. Qual Life Res. 2010;19:875–86.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care. 2001;39:800–12.

    Article 
    CAS 
    PubMed 

    Google Scholar
     

  • Schwartz GJ, Munoz A, Schneider MF, Mak RH, Kaskel F, Warady BA, Furth SL. New equations to estimate GFR in children with CKD. J Am Soc Nephrol. 2009;20:629.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Shiroiwa T, Fukuda T, Shimozuma K. Psychometric properties of the Japanese version of the EQ-5D-Y by self-report and proxy-report: reliability and construct validity. Qual Life Res. 2019;28:3093–105.

    Article 
    CAS 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Middel B, Van Sonderen E. Statistical significant change versus relevant or important change in (quasi) experimental design: some conceptual and methodological problems in estimating magnitude of intervention-related change in health services research. Int J Integr Care. 2002;2:e15.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Kim S-K, Jo M-W, Kim S-H. A cross sectional survey on health-related quality of life of elementary school students using the Korean version of the EQ-5D-Y. Peer J. 2017;5: e3115.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Pei W, Yue S, Zhi-Hao Y, Ruo-Yu Z, Bin W, Nan L. Testing measurement properties of two EQ-5D youth versions and KIDSCREEN-10 in China. Eur J Health Econ. 2021;22:1083–93.

    Article 
    PubMed 

    Google Scholar
     

  • Pan C-W, Zhong H, Li J, Suo C, Wang P. Measuring health-related quality of life in elementary and secondary school students using the Chinese version of the EQ-5D-Y in rural China. BMC Public Health. 2020;20:1–8.

    Article 

    Google Scholar
     

  • Verstraete J, Marthinus Z, Dix-Peek S, Scott D. Measurement properties and responsiveness of the EQ-5D-Y-5L compared to the EQ-5D-Y-3L in children and adolescents receiving acute orthopaedic care. Health Qual Life Outcomes. 2022;20:28.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Wang P, Luo N, Tai E, Thumboo J. The EQ-5D-5L is more discriminative than the EQ-5D-3L in patients with diabetes in Singapore. Value Health Reg Issues. 2016;9:57–62.

    Article 
    PubMed 

    Google Scholar
     

  • Fitriana TS, Purba FD, Rahmatika R, Muhaimin R, Sari NM, Bonsel G, Stolk E, Busschbach JJ. Comparing measurement properties of EQ-5D-Y-3L and EQ-5D-Y-5L in paediatric patients. Health Qual Life Outcomes. 2021;19:1–12.

    Article 

    Google Scholar
     

  • Verstraete J, Scott D. Comparison of the EQ-5D-Y-5L, EQ-5D-Y-3L and PedsQL in children and adolescents. J Patient Rep Outcomes. 2022;6:1–12.

    Article 

    Google Scholar
     

  • Scott D, Ferguson GD, Jelsma J. The use of the EQ-5D-Y health related quality of life outcome measure in children in the Western Cape, South Africa: psychometric properties, feasibility and usefulness-a longitudinal, analytical study. Health Qual Life Outcomes. 2017;15:1–14.

    Article 

    Google Scholar
     

  • Colver AF, Merrick H, Deverill M, Le Couteur A, Parr J, Pearce MS, Rapley T, Vale L, Watson R, McConachie H. Study protocol: longitudinal study of the transition of young people with complex health needs from child to adult health services. BMC Public Health. 2013;13:675.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • EQ-5D-Y User Guide: Basic information on how to use the EQ-5D-Y instrument. https://euroqol.org/publications/user-guides/EQ5DY/Userguide-EQ5D-Y-23-07.pdf. Accessed 17 Oct 2020.

  • Chou HH, Lin CY, Chiou YH, Tain YL, Wang YF, Wang HH, Chiou YY. Clinical characteristics and prevalence of complications of chronic kidney disease in children: the Taiwan Pediatric Renal Collaborative study. Pediatr Nephrol. 2016;31:1113–20.

    Article 
    PubMed 

    Google Scholar
     



  • Source link